Centrum Provázení

Mission Statement

• "Protože táta není kouzelník a lékař není Bůh..."
• Supports families of children with severe diagnoses from the moment the diagnosis is communicated.
• Assists in initial phases of coping with the new reality.

Services Offered

Who They Help

• Children with rare diseases
• Children with severe disabilities
• Prematurely born children
• Children born with low or extremely low birth weight

How They Assist

• During the waiting period for diagnosis
• During the announcement of diagnosis
• Shortly after diagnosis is communicated
• When a child's health condition changes
• During hospital stays and surgeries
• During various examinations (neurology, cardiology, genetics, gastroenterology, etc.)

Communication Support

• With the child's general practitioner
• With specialists
• Securing aids covered by health insurance or state
• Securing support from foundations and charitable funds
• Introduction to patient organizations
• Establishing cooperation with follow-up services (early care, palliative support)

Stories and Impact

• Andulka's Story: Born on October 27, 2017, initially healthy but later showed signs of distress which required family support.

Photographic Exhibition

• "When Words Don’t Help, But Hurt":
  • Highlights the impact of well-meaning but hurtful words through black and white family photographs.
  • Exhibition available in Olomouc shopping gallery Šantovka until the end of January 2022.

Contact and Support

• Various images and links provided for additional resources and contact information.

Additional Resources

• Website provides sections for media (videos, photos, exhibitions), publications, and support opportunities.

Current Updates

• Highlighting human impact through real-life stories and exhibitions.
• Ongoing support and resources for affected families available through their platform.