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Congenital Hypothyroidism Overview

Jun 10, 2025

Overview

This lecture reviews congenital hypothyroidism in newborns, focusing on thyroid function, causes, clinical features, diagnosis, management, and outcomes, emphasizing early detection and treatment.

Thyroid Gland Function and Regulation

  • The thyroid gland forms in the first trimester and migrates to the anterior neck.
  • Its main function is to secrete thyroid hormones: T4 (thyroxine, a prohormone) and T3 (triiodothyronine, active form).
  • Thyroid hormone production is regulated by the anterior pituitary's TSH (thyroid stimulating hormone).
  • Feedback loops: Low T4/T3 triggers increased TSH; high T4/T3 suppresses TSH.
  • Hypothalamus releases TRH (thyrotropin-releasing hormone), regulating the pituitary.

Causes of Congenital Hypothyroidism

  • Most cases are due to thyroid gland abnormalities (dysgenesis: absent, ectopic, or malformed thyroid).
  • A small percentage relate to genetic defects in hormone production or pituitary dysfunction.
  • Maternal factors: antibodies (Graves disease) or medications (methimazole, PTU) can transiently suppress neonatal thyroid.
  • Iodine deficiency is a preventable global cause.
  • Central hypothyroidism is rare, usually involves pituitary (low TSH, low free T4), often with other pituitary hormone deficiencies.

Clinical Manifestations

  • Symptoms in newborns may be subtle or absent; common signs: jaundice, poor feeding, and hypoglycemia.
  • Classical features (exam-worthy): macroglossia (large tongue), persistent open posterior fontanel (>0.5 cm), umbilical hernia.
  • Other symptoms: constipation, bradycardia, coldness, growth and neurodevelopmental delays.

Diagnosis and Newborn Screening

  • Universal newborn screening tests for hypothyroidism, typically between days 1-7 of life.
  • Most states check TSH, some check T4.
  • High TSH with low free T4 suggests primary hypothyroidism; low TSH and low T4 suggests central origin.
  • False positives can occur from certain drugs or illness.
  • Critical to follow up on abnormal screens to ensure prompt diagnosis.

Management and Treatment

  • If TSH >40 mIU/L on newborn screen: start levothyroxine immediately, before confirmation.
  • If TSH 20-40 mIU/L on repeat labs: start medication.
  • Initial dose: 10–15 mcg/kg/day levothyroxine (oral or IV if needed).
  • Goal: normalize TSH and free T4 within 2–4 weeks; check labs every 1–2 weeks until normalized, then monthly for 6 months.
  • Pediatric endocrinologist should supervise ongoing care.
  • History should assess maternal thyroid disease, family history, and medications.

Outcomes

  • Early treatment prevents neurodevelopmental deficits; delay increases risk for cognitive impairment.
  • Lifelong medication is needed if the thyroid gland is absent or severely dysgenic; transient causes may resolve.
  • Retest thyroid function at age 3 to determine if therapy can be stopped.

Key Terms & Definitions

  • Congenital Hypothyroidism — Low thyroid hormone levels present at birth.
  • Thyroxine (T4) — Primary hormone produced by the thyroid, mostly converted to T3 in the body.
  • Triiodothyronine (T3) — Active thyroid hormone.
  • TSH (Thyroid Stimulating Hormone) — Pituitary hormone stimulating thyroid hormone production.
  • Thyroid Dysgenesis — Abnormal development or location of the thyroid gland.
  • Central Hypothyroidism — Thyroid hormone deficiency due to pituitary or hypothalamic dysfunction.
  • Levothyroxine — Synthetic thyroid hormone used for treatment.

Action Items / Next Steps

  • List five symptoms of hypothyroidism.
  • Describe expected lab values in a baby with a small ectopic thyroid.
  • Explain why high-dose thyroid medication should be started by two weeks of life.