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Cardiac Amyloidosis Overview

Oct 24, 2025,

Overview

This lecture discusses the identification, diagnosis, and management of cardiac amyloidosis, emphasizing clinical suspicion, diagnostic algorithms, and recent advances in therapy.

Introduction to Cardiac Amyloidosis

  • Cardiac amyloidosis occurs when misfolded proteins (AL or TTR) deposit in the heart, causing restrictive cardiomyopathy.
  • Two main types: AL (light-chain) from plasma cell disorders, and ATTR (transthyretin), either wild-type (age-related) or variant (genetic mutation).

Clinical Suspicion and Presentation

  • Suspect amyloidosis in heart failure with preserved ejection fraction (HFpEF) and unexplained left ventricular wall thickening.
  • Look for clues: no hypertension, elevated troponin with normal coronaries, carpal tunnel syndrome (especially bilateral/older age), lumbar spinal stenosis, biceps tendon rupture, or neuropathy.
  • Autonomic dysfunction (orthostatic hypotension) and intolerance to vasodilators are red flags.

Diagnosis: Workup and Algorithms

  • EKG may show low or discordant voltage, but normal voltage does not rule out amyloidosis.
  • Begin with monoclonal protein screening: serum and urine immunofixation electrophoresis and free light chain assays.
  • If positive for monoclonal protein, refer to hematology and pursue tissue biopsy for AL amyloidosis.
  • If negative for monoclonal protein, order Technetium-99m pyrophosphate (PYP) scan; a positive scan supports ATTR diagnosis.
  • Genetic testing distinguishes ATTR wild-type from variant forms.
  • Cardiac MRI is not required for diagnosis unless the differential is unclear.

Management and Treatment

  • AL amyloidosis: treat with hematology-directed chemotherapy; cardiology manages symptoms.
  • ATTR amyloidosis: Tafamidis is the FDA-approved TTR stabilizer, shown to reduce mortality and hospitalizations.
  • Silencer therapies (e.g., patisiran) are approved for variant ATTR with neuropathy but not for cardiomyopathy alone.
  • Guideline-directed heart failure medications (e.g., ACEi, ARB, beta-blockers) are often poorly tolerated; prioritize symptom management.
  • Patients with amyloidosis and atrial fibrillation require anticoagulation regardless of CHADS-VASc score.

Key Terms & Definitions

  • Amyloidosis — Condition where misfolded proteins deposit in organs causing dysfunction.
  • AL (light-chain) amyloidosis — Amyloidosis from plasma cell disorders producing abnormal light chains.
  • ATTR amyloidosis — Amyloidosis from transthyretin protein, either wild-type or variant (genetic).
  • Technetium-99m pyrophosphate scan — Nuclear imaging test to detect ATTR cardiac amyloid.
  • Tafamidis — Medication that stabilizes TTR tetramers, slowing ATTR amyloidosis progression.

Action Items / Next Steps

  • Review clinical features that should prompt suspicion of cardiac amyloidosis.
  • Practice ordering and interpreting the correct amyloidosis diagnostic tests.
  • Read about tafamidis and other therapies for ATTR amyloidosis.
  • Know when to refer to cardiology or hematology specialists.