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Understanding Williams Syndrome Characteristics

Sep 10, 2024

Lecture Notes on Williams Syndrome

Introduction to Genes and Williams Syndrome

  • Chromosome 7: Small cluster of genes around the elastin gene.
  • Williams Syndrome Definition: Missing set of genes results in an individual with a unique profile globally.

Characteristics of Williams Syndrome

  • Social Behavior:
    • Love for interaction and engagement.
    • Enjoy making eye contact and receiving smiles.
  • Employment Example: Some individuals work as greeters due to their pleasant demeanor and ability to make others happy.

Williams Syndrome and Music

  • Musical Inclination: Many individuals have a deep connection with music, arts, and dancing.
  • Emotional Responses: Intense emotional reactions to music, often more emotionally felt than others.

Challenges Faced by Individuals

  • Cognitive and Focus Challenges:
    • Difficulty focusing and poor filtering of distractions due to hypersensitive hearing.
    • Wide IQ range; verbal and non-verbal reasoning might be higher than overall IQ suggests.
  • Medical Problems:
    • Range from few to significant, largely cardiovascular issues.
    • Example: Supravalvular aortic stenosis, requiring surgeries and causing blockages.

Personal and Family Experiences

  • Interpersonal Relationships:
    • Tendency to form strong bonds and potential interest in adopting children.
  • Parental Experience:
    • Initial heartbreak followed by adapting and appreciating the child's qualities.
    • Emphasis on living in the moment and counting blessings rather than focusing solely on challenges.

Conclusion

  • Perspective on Williams Syndrome: Despite challenges, individuals are often seen as full of life and happiness, focusing on their unique qualities rather than their disabilities.