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Understanding End-of-Life Doulas' Role
May 6, 2025
What an End-of-Life Doula Can Do for You
Overview
Death and dying are challenging topics, particularly regarding end-of-life desires and legacies.
Terminal illness can bring uncertainty about remaining time and how to spend it.
Death affects both individuals and their families, and each person grieves differently.
End-of-life doulas can help make the dying process more manageable by providing support.
What is a Death Doula?
A death doula, or end-of-life doula, assists a dying person and their family before, during, and after death.
They provide emotional and physical support and education about the dying process.
Doulas ensure that connections between the dying person and important people are maintained.
They are not licensed for medical assistance but work alongside healthcare teams and advocate for patients' wishes.
Interest in end-of-life doulas has grown, especially post-COVID-19.
Services Provided by End-of-Life Doulas
Allow open discussions about the dying process
Reduce anxiety, guilt, and shame related to death
Assist in environmental planning (sights, sounds, smells)
Coordinate family visits
Oversee care with hospice and palliative teams
Educate on medical directives like do-not-resuscitate orders
Create meditations and rituals
Sit vigil with the dying person
Help with obituaries and funeral planning
Offer grief counseling and companionship
Facilitate legacy work (memories, closure, creative honors)
Difference Between a Death Doula and Hospice
Both provide counseling and nonmedical support.
Doulas are not licensed for medical care but are often integrated with hospice teams.
They focus on advocacy and essential conversations, sometimes overlooked in medical care.
Training and Certification
Various accreditations exist, but no universal requirements.
Training includes reading, work-study, workshops, and recommendations.
Ethical guidelines are vital, given the vulnerability of individuals and families.
Considerations for Hiring a Death Doula
Hiring a doula is a personal decision that should be made with family discussions.
Doulas provide valuable support, helping clarify and manage end-of-life experiences.
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View note source
https://health.clevelandclinic.org/death-doula