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Key Insights on Thyroid Eye Disease

May 15, 2025

Understanding Thyroid Eye Disease (TED)

Overview of TED

  • Thyroid Eye Disease (TED), also known as Graves eye disease, is an autoimmune disorder.
  • Occurs when the immune system mistakenly attacks the muscle and fat tissue behind the eyes, causing inflammation and scar tissue formation.

Symptoms of TED

  • Eye pain and pressure: Pain may occur in, around, or behind the eye, especially when moving the eyes.
  • Itchy eyes: Sensation of itchiness or irritation.
  • Blurry vision: Objects may appear out of focus.
  • Eye bulging: Known as "proptosis" or "exophthalmos," is a common visible sign.
  • Effects can impact physical appearance, visual ability, and emotional well-being.

Common Terms for TED

  • Often associated with, but distinct from, Graves disease.
  • Can be referred to by various names such as:
    • Graves eye disease
    • Graves ophthalmopathy
    • Graves orbitopathy
    • Graves disease eyes
    • Thyroid-associated ophthalmology (TAO)
    • Thyroid orbitopathy

Diagnosis of TED

  • Important to detect early to prevent permanent damage.
  • Diagnosis is generally performed by TED Specialists, who may include:
    • Oculoplastic surgeons
    • Neuro-ophthalmologists
    • Specialized ophthalmologists and endocrinologists
  • Diagnostic Steps:
    • Baseline eye exam to identify symptoms like red or watery eyes, improperly closing eyelids, or puffy eyelids.
    • CT or MRI scans to assess conditions behind the eye.
    • Use of an exophthalmometer to measure eye bulging.
    • Detailed medical history review including thyroid conditions, family history, and smoking status.

Tests for TED

  • Blood tests may be conducted to measure thyroid hormone levels and antibodies related to TED.

Additional Resources

  • Access to educational materials and email updates for further learning about TED.
  • Resources available for patients and caregivers.

Contact Information

  • Questions about TED? Call 1-833-833-3930.
  • Find a TED Specialist here.

  • This information is intended for educational purposes and not a substitute for professional healthcare advice.

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