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Navigating Deafness: A Family Journey

May 7, 2025

Lecture Notes on "For a Deaf Son"

Introduction

  • Described and Captioned Media Program: Provides services for the visually and hearing impaired, funded by various organizations including Accordia, American Airlines, and the Corporation for Public Broadcasting.
  • Narrative: A personal story about a family dealing with a son's deafness, their journey, and the challenges they faced.

Family's Initial Experience with Deafness

  • Thomas' Birth: Born in September 1988.
  • Diagnosis: Parents noticed something wrong around age one. Diagnosed as profoundly deaf.
  • Emotional Impact: Mother was devastated; father reflects on personal guilt and the unknowns of the condition.
  • Initial Approach: Focused on hearing aids and speech therapy.

Understanding Deafness

  • Gallaudet University: A significant event where students demanded a deaf president; marked a civil rights victory for deaf people.
  • Communication Challenges: Deaf children are cut off from auditory learning. Importance of visual communication highlighted.

Speech vs. Sign Language Debate

  • Speech Therapy: Thomas had some high-frequency hearing. Family emphasized speech therapy but struggled with communication.
  • Sign Language: Debated introducing sign language and the cultural aspects of the deaf community.
  • Community and Language: Discussions with deaf community highlighted the cultural identity and importance of American Sign Language (ASL).

Educational Choices

  • Preschool Choices: Options included speech-only or sign-supported classes. The family initially chose speech-only.
  • Cochlear Implants: Considered but deemed inappropriate for Thomas. Highlighted the complexity and personal nature of decisions.
  • Learning Centers: Visited various educational settings (oral schools, ASL-based schools) to understand different approaches.

Cultural and Emotional Insights

  • Deaf Culture: Gallaudet is the cultural hub; deafness seen as a cultural identity rather than a disability.
  • Personal Stories: Shared experiences of parents and individuals within the deaf community shaped understanding.
  • Role Models: Deaf adults as role models and the importance of having deaf educators and community involvement.

Family Decisions and Reflections

  • Parental Dilemmas: Balancing the need for speech development with the potential benefits of sign language.
  • Long-term Goals: Parents grappled with how to best prepare Thomas for a world that is predominantly hearing.
  • Emotional Journey: The family's emotional journey, including realizations and acceptance of Thomas' deaf identity.

Conclusion

  • Ongoing Journey: The family has not reached a definitive conclusion; their approach is evolving.
  • Final Reflection: The story is ongoing, highlighting the continuous nature of learning and adapting to Thomas' needs.

The lecture captures the essence of navigating deafness within a hearing family, exploring cultural identities, and the complex choices involved in raising a deaf child. The journey is marked by emotional challenges, cultural discoveries, and evolving family dynamics.