Veravia's Story: Thriving Against the Odds

Overview

• Veravia is a teenager with a rare medical condition called Pentology of Cantrell.
• This condition causes her heart to beat outside her chest, covered only by a thin layer of skin.
• There are only 50 documented cases of this condition in the world.

Diagnosis and Prognosis

• Doctors initially gave a grim prognosis, saying she wouldn't survive even a day.
• Veravia has defied the odds and is now 14 years old and in eighth grade.

Daily Challenges

• Veravia must be careful with all physical activities.
• She has decreased stamina and even struggles with simple tasks like tying her shoes.
• She used to wear a shield to protect her heart but no longer does so, feeling confident in her ability to protect herself.

Perspectives on Life

• Veravia believes her survival is more due to her mother's love than a medical miracle.
• Her mother's unwavering belief and love have played a key role in her life.
• Veravia is proud of herself for loving herself and being unafraid to be social.

Advice to Others

• Veravia advises other teens facing adversity not to care about what others think or say about them.
• Self-belief is crucial and what you think of yourself is the most important.

Future Outlook

• Veravia has been told she might not live past 30, but her mother believes she will beat the odds once again.